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Program

 

9:00-9:20             Registration and Coffee

9:20-9:30             Welcome & Opening Remarks

Luciano Floridi, University of Oxford and Alan Turing Institute

9:30-10:15                   The Ethics of NGS in Newborn Screening

                            Lennart Hammarström, Karolinska Institutet

10:15-11:00         Concealment and Discovery: The Role of Information Security in Biomedical Data Journeys

                            Niccolò Tempini and Sabina Leonelli, University of Exeter

11:00-11:30          Coffee Break

11:30-12:15         The General Data Protection Regulation (GDPR) and the Use of Health Data in Biomedical Research: Opportunities and Challenges

Alessandro Spina, European Medicines Agency

12:15-13:00         Do No Harm: eHealth, Medical Data Analytics and the Hippocratic Oath

                            Philippe Bradley-Schmieg, Covington & Burling LLP

13:00-14:00          Lunch

14:00-14:45                 “Talk to the Hand for the Ear is not Listening” – Data Ownership and Data Control in Medical Implant Devices and the “Internet of bodies”

                            Burkhard Schafer, University of Edinburgh

14:45-15:30         The Ethics of Algorithms in Biomedical Analytics

                            Brent Mittelstadt, University of Oxford

15:30-16:00          Tea Break

16:00-16:30         Breakout session – Medical Data Analytics (MDA)

Challenges: how can an institution come to ethical harm, in a MDA context?

Opportunities: how can data ethics help an institution, in a MDA context?

16:30-16:45         Concluding remarks and end of the meeting

Luciano Floridi, University of Oxford and Alan Turing Institute

 

7.30                     Dinner at Balliol College (see separate details)