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Program

 

9:00-9:20             Registration and Coffee

9:20-9:30             Welcome & Opening Remarks

Luciano Floridi, University of Oxford and Alan Turing Institute

9:30-10:00                   Privacy and Finnish law reforms – balancing individual and societal interests

Sirpa Soini, Helsinki Biobank

10:00-10:30         Can Big Data save the NHS?

Ian Denley, System C Healthcare

10:30-11:00         The ethics of NGS in newborn screening

Lennart Hammarström, Karolinska Institutet

11:00-11:30          Coffee Break

11:30-12:00         Ethics of patients in clouds open plan care

James Batchelor, University of Southampton

12:00-12:30         The evolving health data ecosystem: challenges for ethics and policy

Effy Vayena, University of Zurich

12:30-13:00         The governance of biomedical big data: a legal map

Ugo Pagallo, University of Turin

13:00-14:00          Lunch

14:00-15:30         Breakout session 1

Challenges: how can an institution come to ethical harm, in a MDA context?

15:30-16:00          Tea Break

16:00-16:30         Breakout session 2

Opportunities: how can data ethics help an institution, in a MDA context?

16:30-16:45         Concluding remarks and end of the meeting

Luciano Floridi, University of Oxford and Alan Turing Institute